PDF Ebook Life Interrupted: Living the unimaginable, Huntington's disease patients and caregivers share their truth of strength, courage, and perseve
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Life Interrupted: Living the unimaginable, Huntington's disease patients and caregivers share their truth of strength, courage, and perseve
PDF Ebook Life Interrupted: Living the unimaginable, Huntington's disease patients and caregivers share their truth of strength, courage, and perseve
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Living the unimaginable, twelve Huntington's disease patients and caregivers share true stories of struggle, devastation, and life-shattering events as they travel the journey that is HD. Along the way, you'll meet ordinary people who develop extraordinary strength, courage, and perseverance as they try to counterbalance the chaos of lives falling apart as HD shows up like an out-of-control wrecking ball. One woman struggles for years to find her biological family, then discovers more than she expected. Agonizing parents watch helplessly as their children endure years of pain, lose every bit of their quality of life, and die far too soon, some from the juvenile form of HD. Couples fall in love, marry, and start their families just in time for this horrific disease to step in and rip everything away, eventually taking their soulmates' lives and leaving them with the knowledge that their children, too, may face the same terrible fate. Witness the strength of these families as they rise to the challenge and advocate to be the last generation ever to live with the horrors of Huntington's disease, a genetic neurodegenerative disease that has often been called the worst disease known to mankind.
- Sales Rank: #427266 in Books
- Published on: 2015-07-15
- Original language: English
- Number of items: 1
- Dimensions: 9.00" h x .86" w x 6.00" l, 1.12 pounds
- Binding: Paperback
- 380 pages
Most helpful customer reviews
5 of 5 people found the following review helpful.
Incredibly moving.
By Matt Ward
This book is incredibly moving. I have Huntington's Disease myself, which is an incurable terminal neurodegenerative condition. It is also inherited. HD is like having ALS, Parkinson’s and Alzheimer’s – simultaneously. The first horror is inheriting it from your parents. The second horror is passing it on to your children. Please read this book. Let's make this the last generation with Huntington's Disease.
3 of 3 people found the following review helpful.
Worst are those who have it when they are young
By Amazon Customer
I still have not finished the book yet. But these are true stories of how HD affects us. I know most of them and so already have an idea how their life in affected by HD. HD is a nasty disease with no cure. It affects generations of families. Worst are those who have it when they are young. We also suffer financially. We need more awareness of HD. We need more个government involvement to help us. Sadly to say, my application for disability was denied. Yes US disability. They said I am not a US citizen and so on. Please help us to raise awareness of HD.
3 of 3 people found the following review helpful.
Touching and courageous true stories
By Lisa J Boudreau
I am amazed at the courageous and brutal openess to share their lives and their true stories with their struggles to deal with such a tragic fatal family diesease that wipes out family trees! 12 touching stories dealing with a fatal disease.....and actually written to get into their minds and lives of people living with Huntington's disease!
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